Rare disease: The body of this girl is slowly turning to stone, not a curse but a strange disease worries the parents - Newztezz - Latest News Today, Breaking News, Top News Headlines, Latest Sports News

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Friday, July 2, 2021

Rare disease: The body of this girl is slowly turning to stone, not a curse but a strange disease worries the parents


 Every family is happy when a newborn baby is born. However, if you find out that the child has a serious illness, for which there is no cure, then a mountain will fall on your head. Parental anxiety is on the rise. The parents of 5-month-old Lexi Robbins have a similar condition. Their baby is also afflicted with such a rare disease. Which is difficult to treat.

The baby was born on January 31st. Her parents Alex and Dave were very happy. Because they did not know anything about the disease. The girl started the activity like other children, she felt that her child is very strong. At first, something like a goat appeared on the girl's feet. The girl was then taken to the doctors. It is learned that the girl has
a disease called Fibrodysplasia Ossificans Progressiva.

Why the stone is becoming the body

In this genetic disorder, the flesh and cells inside the body begin to deplete and the bones take their place. For the first time in April, after an X-ray, it was discovered that Lexi's legs were bulging and her toes were double. Doctors also said that the child may not be able to walk at present. The parents read a lot about the disease on the internet and took the child to a specialist. All her genetic tests were done and the child was confirmed to have Fibrodysplasia Ossificans Progressiva.

Doctors are also surprised to see this disease

Lexi was shown to Britain's best doctor by her parents and she saw the child's illness and said she had never seen such a case in her 30-year career. Due to this disease, the bones begin to develop outside the skeleton of the body and it gradually removes the muscles and cells and begins to take their place.

This condition means that the child will not be able to get vaccines or injections, nor will he be able to work with his teeth like other children. Due to the expansion of the ear bone, it can also become deaf, while the movement of the arms and legs can also stop. The saddest thing is that there is no cure for this disease of the child.

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